So I missed updating at 4 months because life is busy
Weight: 15lbs 4oz on our home scale
Clothing size: 6 months
Milestones: rolling from front to back and back to front, sleeping on her belly, first cold, first fever, giggling, sitting in the bumbo, standing in the jumperoo, sitting in the stroller not in her carseat, first Christmas, first New Years, trip to the Children's Museum, met her new bestie Molly Mitchler, started daycare and spent a lot of time in her bubble called home.
Likes: being on her tummy to play and sleep, her activity mat, putting all things (especially her hands) in her mouth, being held, her sister, milk and playing in her bouncy seat.
Dislikes: her nebulizer with a passion, two of the positions of her CPT, being tired, if we are being slow to get her the bottle when she's hungry and red lights when she's in the car.
She is doing really well all things considered. She is sleeping great at night most of the time and she naps well at school too. They have been wonderful to us and her since she started. There were a few weeks there she needed to have a treatment mid day and they were able and willing to do it. My mom went one day to show them how to do it (thanks mom!). She has gotten some congestion like every other kid this winter and a little cough but we are doing what we need to to curb those. She's had two clinic appointments so far and everything came back normal at her appointment on January 31st. Her x-ray from December to January showed that the inflammation was gone (yay!) so we could go back down to two treatments a day. Her blood work is being sent off this week to Johns Hopkins to get tested to find out what her second mutation is. We should know within the next two months hopefully. They do the testing every other month so hers will be in the March testing.
We go for her next clinic appointment on the 6th and hopefully we can talk about when/how she can get the vibrating vest to replace the manual CPT. More to come in that department.
Now some photos from the past two months!
